our hope is that if you have found this blog and have a son or daughter with the same or similar condition, (sagittal craniosynostosis with the modified pi procedure surgery), you will find encouragement and comfort in knowing what happened in our case and what you may be able to expect in yours. (of course, every child and situation is different, but when i first found out about the diagnosis, i was searching for anybody who had the same thing and could tell me, first hand, what to expect.). as much as we wish our boy would not have had to go through it all, in the long run, this was a relatively problem-free experience. the recovery was amazingly quick and we are very satisfied with the results. take heart in knowing that you too, will make it to the other side and have a happier, healthier child in the end. if you have questions about our experiences, please email me at milesandmems at gmail dot com.
timeline:
jan. 26, 2011: diagnosed by pediatrician @ his 2 month check-up
jan. 26, 2011: x-rays confirmed diagnosis
feb. 4, 2011: met with neurosurgeon
feb. 7, 2011: scheduled surgery
mar. 9, 2011: pre-op appointment and blood work
before:
day 1
day 2
mar. 17, 2011: home from hospital (yes, only 2.5 days!)
post op week
mar. 29, 2011: 2 weeks post op update
after:
apr. 13, 2011: 4 week check-up with neurosurgeon
may 18, 2011 2 months post op (6 months old)
